I want to dedicate my blog this week to my cousin. He lives in California and has a dog who loves him a lot. Frosty, (that's his dog) asked me if I would tell my blog people about my cousin Zach.
Zach has NF (Neurofibramatosis). And for many years, Zach has helped to raise money for research to combat NF. He even has a Facebook page and he calls it Zach Attack! Which I think is pretty great. I don't know that much about NF except Frosty says it's pretty serious. So I'm going to let Zach's mom tell you about it.
Please don't feel like you have to give money. I won't know if you do or not, but I will know that you know about the disease now. That's what Frosty wanted me to do for Zach.
Joyce Simmons Marks
Hi Friends!
Will you take steps with us to End NF?
On October 22, 2016, we will be participating in the LA NF Night Walk to increase awareness of neurofibromatosis (NF) and raise funds for the Children’s Tumor Foundation...and we need your help. This year the event will be hosted by CBS weathercaster Josh Rubenstein, Freeform's star of Young and Hungry, Jonathan Sadowski, and supported by NY Jets kicker Nick Folk located at 4024 Radford Ave. Studio City, CA. It is a night fundraising walk with a glow in the dark theme and there will be food, wine, beer, kids carnival, and celebrity karaoke at the afterparty. Registration opens at 4:30pm and the walk starts at 6:00pm. The afterparty with karaoke will be from 6:00 - 9:00pm.
NF has touched our lives in a profound way. Zach was diagnosed with NF 14 years ago. He has a progressive brain tumor that required a total of 4 years of chemotherapy to arrest. We are lucky...Zach’s been off of chemo for 6 years! We are optimistic about his future hoping the brain tumor nightmare is behind us for good! But NF is a lifelong disorder and one that he will have to deal with forever. Please join our efforts to raise funds for research and support by making a donation to this worthy cause, and/or walk with us. You will help the Children’s Tumor Foundation fund research and provide information, programs, and services for the millions worldwide who live with NF.
There is no cure for NF. There are no effective treatments. But the Children’s Tumor Foundation has created a number of innovative programs that are already speeding up the drug research and development process. They are actively driving clinical trials and are bringing together top scientists to work collaboratively to solve the mysteries of NF. It is work that gives renewed hope to the millions of people worldwide who live with NF.
It would mean so much to us if you could help us reach our fundraising goal of $5000.00. If you can, please make a donation today by visiting my fundraising page below. Every dollar truly helps! If you would prefer to send a check, please make it payable to Children’s Tumor Foundation, include in the memo area “In Honor of Zach Marks and LA NF Night Walk,” and mail it to:
Children’s Tumor Foundation
Attn: LA NF Night Walk
120 Wall Street, 16th Floor
New York, NY 10005
If you would like to learn more about neurofibromatosis and the incredible work being done at the Children’s Tumor Foundation, visit
www.ctf.org.
Thanks for listening and learning about NF and my cousins Zach and Frosty. It's important.
Love, G
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